Recently retired, Regina launched UniquelySarc, combining her passion for earrings with sarcoidosis awareness. The author of ‘To Hell with Sarcoidosis and Other Illnesses,’ she actively advocates within the sarcoidosis and rare disease communities. Regina also moderates the AnCan Sarcoidosis support group and recently founded a creative writing class at AnCan to encourage self-expression.
Ken Mason has way too much experience with cancer ...... diagnosed with low risk prostate cancer for which he follows active surveillance, he subsequently found low risk bladder cancer during an NIH exam, and then kidney cancer.
Peer experience in many places!
Being the only person that she knew with VSS was isolating, so it was a relief to know that there was a community providing resources for those with VSS.
Susan Lahaie was a caregiver to her husband Ron Silverio who was diagnosed with advanced prostate cancer in 2012.