Sarcoidosis

This support group is for patients and caregivers of a Sarcoidosis patient. We are all patients supporting one another.

Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function.

This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. In some cases, the disease goes away on its own. In others, the disease may not progress but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long- term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population sarcoidosis can be debilitating and life-threatening.

Our video chat virtual group meets on the 2nd Wednesday of each month at 7 pm Eastern, 6 pm Central, 5 pm Mountain and 4 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.

Check out Sarcoidosis Moderator Regina Gordon’s Book!

To Hell with Sarcoidosis and Other Illnesses: Poetic Justice Journaling My Inner Thoughts